Today I feel like enough is enough. He's been to enough doctors enough times.
He's been poked, prodded, and tested too many times. I'm tired.
Is he really "sick"? Is there something really wrong?
I realize he has a hard time swallowing things and that he still throws up.
But the major things have been tested for, right?.
Can't we just continue with the occupational therapy to strengthen his arm and work on feeding
and forget about the rest?
Forget about Shriners every other week for weigh in's? He's only actually lost weight once.
Forget about the pediatrician there who is very nice by the way but wasn't doing the testing we needed anyway?
Forget about the dietitian that seems to think that taking him off of formula and switching to D milk is a good idea right now? He won't even swallow regular food and the formula has the most complete nutrition.
I'm trying, I am. I try EVERYDAY to give him solid foods. We are progressing at our own rate.
It's slow but we are progressing.
Dear dietitian, Please don't be too pushy. Mother's instinct is way better than anything that can be learned.at any school..
Readers: Don't get me wrong the kid loves mashed potatoes and a few other things but anything that's much more solid than that he has a hard time swallowing and mostly just spits out.
I see the emotional effects it all has on him.
It's been about a year now. Pretty much his entire life.
I will be glad to see the reflexologist when we get to Texas.
They did weigh him yesterday. 17 pounds 1 ounce. Not a lot of gain but it's in the right direction.
Well, I found my camera (well, Heath found it in my coat pocket - I'm still not sure what he was doing wearing it but I have my camera back)
ONLY I have lost my wallet.
I tore up the house yesterday looking for it. I hope it's not lost, lost and that it's just misplaced.
Speaking of Lost. I hate that show. Heath borrowed it and I watched an episode and it sucked me right in.
As I watched another episode I kept saying "I'm not watching this anymore" then I watch the next.
In all I've seen about 6 episodes of season 1 and about 7 episodes of season 4.
Heath had to fill me in on the in between.
Now that I finished season 4 I'm done.
I don't mind if someone tells me what happens but I'm done watching.
It's also a little too scary for me. I don't do scary.
Noah is so excited to go on the plane and go to Texas. Although I think he will have a little bit of a hard time being away from his daddy. He's been saying a lot lately, "I want daddy."
My reply to him is, "me too, buddy."
Heath has been so busy lately we haven't seen much of him. We did get a good day with him last Saturday.
Sometimes Noah sings songs. I can't understand the words some of the time but when he stops I ask him If he'll keep going. He does and I get to smile for a little longer. .
Noah loves dogs.
Asher is terrified.
Noah doesn't like to sit still much and likes to touch everything.
Asher is curious but it a very calm baby.
They are different but equally loved
Asher has 4 teeth now. One on top, three on the bottom. He will have the front teeth spread like Noah has.
Good thing it's stinkin' cute. Well, I think it is anyway.
I played a game or two of knock out (basketball game) with the YM and YW last night.
I won a game. Was glad to see I still have a little bit in me. An athlete that is.
It's true that I gave my first talk at church when I was 3. I memorized it and 27 years later I can still recall some of it. Also true that I'm at Heidi's house doing laundry right now. She probably doesn't know that. Thanks Heidi! (and deric, too) Wait, Heidi just got home for lunch. She knows now.
Also, don't take off points for spelling. I couldn't figure out spell check on this computer.
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8 comments:
"Somebody did a kindly deed. Somebody proved a friend in need." Is that it? You were just too precious giving that talk....Come to think of it, you are just too precious now!!! Love you!
Mom
I just love you. I do.
"...Somebody sang a beautiful song. somebody smiled the whole day long. Was that somebody you?" My mom helped me memorize it. Thanks mom,love you and Heidi, I love you
When lost first came out I figured it would be lame-people crashing on an island?? We are completely sucked into it now. I end up dreaming about it every tuesday night. I agree that your intuition is much better than anything learned at school. good luck with everything.
Stick with the mothers intuition.....it is usually better than anything doctors (or anybody else for that matter)can come up with. Don't let them make you feel stupid for doing what you think is best. I did for years, and it didn't do us any good in the long run.
Maybe Heath was wearing your coat cause he missed you. :0)
YOU AREN'T GOING TO WATCH ANYMORE EPISODES? I have Seasons 2 & 3 on DVD if you want to watch if for yourself rather than take Heath's word.... There is something about watching it and catching all the small little details... I will not tell you what happens... you have to keep watching. I think Season 5 is less scary anyway!
You are the mom and I guarantee you know better than anyone what your child needs. You choose. He is beautiful and you are doing a great job!
Hey Erin,
I don't know if you remember me or not, but we lived in PVTH on Pinion St. We moved to TX 2 1/2 years ago. Anyhow, I just like checkin' up on you guys every now and again because I always really thought you were a great family. I'm so glad that you get to take Asher to a reflexologist! My hubby sometimes jokingly calls natural doctors witch doctors too (he used to be serious), but since we've been married 7 1/2 years, he's learned some important lessons about how the Lord has blessed us with a balance in all things-we just have to know where to look for it. (I made him "keep an open mind".) Fortunately, Heavenly Father usually shows us (especially mothers) where to go, so we can help our babies. Anyhow, just wanted to say hi and good luck!
You know, as I read and keep up with Asher's progress, I think about how it must be having to haul him to Shriner's and having to constantly work with him, but I guess I never reeeeally thought about the real toll it must take. I'm glad you laid this out on here, all the little things that people might not think about that are the real things weighing on your heart. Go with your gut (and brain!)... HF gave him to YOU for a reason and you know that sweet baby better than anyone. Hope your TX trip was a blast. Wish we could have gotten together and actually meet (I think I kind of sort of met you once...)!
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